Hope you all had a very Merry Christmas and an awesome new years! We definitely did. The kids got to see so much of the family and they had a blast playing with their cousins and opening tons of gifts! I've started planning Cash's first birthday party, and i cannot believe it is only a month and a half away! This has been a very crazy year- so emotionally challenging yet so blessed in many, many ways. We have so much to be thankful for in this past year. Cash is making some wonderful progress, and it shouldn't be long before he is walking around on his own! We just have to find the right motivation to get him to take those steps. He is doing very well in therapy. He gets sick of being messed with after about 30 minutes, so they hour long sessions are usually cut short. He's got a super strong will, and will let you know when he just wants to be left alone. Thats a red head for ya! Anyways, as some of you know, most children with Cash's condition have multiple hormone deficiencies due to the pituitary gland not working properly. The most common deficiency is having little to no growth hormone, and if thats the case then the child will have to have an injection of growth hormone 6 nights a week until they are done growing. There are also many other serious deficiencies they can have, and have to take hormone replacements forever. Usually when it is severe, they child will show signs at birth and need to be hospitalized for different reasons. Luckily for Cash, he has not shown any signs of deficiencies, and he seems to be growing properly on the growth charts... so far. He is VERY lucky because it is uncommon for that to happen. As a precaution, we are having to go to a Pediatric Endocrinologist and get his hormones tested for the first time, and even if they show no problems, he will get them tested every 6 months. We are extremely nervous to do this, because we have talked to parents whose children seemed to be fine, who had surprising results on the test. We don't have a test date yet because the Endocrinologist is reviewing Cash's labs, films, and charts before them appointment is set. We should know by tomorrow of Monday when it will be. We know that the Lord will take care of our son. I'm believing that Cash is going to be in the very small percentage of children without the other medical problems, and that he is going to continue to shock the doctors with how wonderful he is doing. He's a fighter, I know that no matter what happens, he's going to be a happy guy!
Also, we have the opportunity to go to dinner with a couple of people that work for the Stem Cell company in China, and learn even more about what we will be experiencing. We will be going tomorrow night, along with another couple who live in Carrolton. They have a baby girl named Piper who is deaf and blind. They are raising money for her trip also, so please pray for their success and their strength as they go through this.
The fundraising is coming along. We have raised about 40% of what we need for his first treatment. We are getting there! We still need to spread the word and get as many donations as possible to make this happen for Cash. We've had friends do some awesome things to help us out, and we appreciate is SOOOO much!!! We've had some awesome donations come in over Christmas, thanks to our wonderful family and friends :). We are almost half way there, so keep it coming guys!! You guys are so awesome and we love and appreciate you more then words can say.
Thank you for your support~
Jesse and Morgan
- Cash Michael Williams
- Cash was born on 2-22-10. He is a beautiful baby boy with 2 sisters that love him very much! When Cash was 2 months old, we noticed that he wasn't tracking with his eyes. We took him to the doctor &, after an MRI, found out that he has Septo-Optic Dysplasia & is blind. The doctors told us that there's nothing we can do. We refused to believe that we were helpless. We researched immediately & found out about Stem Cell Transplants being done in China that can help regrow the nerves. Many desperate parents & children are going over there & coming back with amazing improvements... miracles! The treatment costs are incredibly expensive and insurance doesn't contribute. With the help of many generous people, we were able to take Cash to China in June 2011. He was completely blind before we went. Now not only does he see light, but he can locate the source that it is coming from. He sees colors as well and seems to really notice the color red. We are currently fundraising for trip number 2. We have PayPal set up that goes directly into Cash's fund. Please help us spread the word and give the gift of sight to our precious little man!